Hope – Kashif Iqbal Thalassaemia Care Center (KITCC)

http://karachi.metblogs.com/archives/images/2008/02/febmb/kitcc-thumb.jpg
( I request readers to spread the message so more could join the noble cause).

Fellow A. Hamza shares this story about Kashif Iqbal Thalassaemia Care Center Karachi, a facility in the country where Thalassaemia patients are treated free of cost. This trust came into being when the 16-year old boy of Mr. Iqbal died from this dreadful, genetic disease. Today, he along with his highly dedicated family and staff members work day and night to save children from dying. And they don’t ask for donations. People, rich and poor, pour their bank accounts and their sympathy to this organization.

Read more. Today, with 18 branches across Pakistan, this trust serves countless children and adults by educating them on this disease, its prevention, and providing free testing facility to all who want to know whether they are a Thalassaemia minor or not. Two Thalassaemia minors must not marry. If they do, the chances are that 1 in 4 children born will be a Thalassaemia major. And that’s a life-time of a problem.

The above photographed child is 12 year old from Peshawar. She is a Thalassaemia Patient and therefore needs regular blood changing to keep her alive. She is very intelligent and wants to learn English. She has no other major interest in life. Kashif Iqbal Trust is looking after her with skill, dedication and lot of money. Please help them keep her and countless others alive by funding the trust. For further details contact:

Kashif Iqbal Thalassaemia Care Center (KITCC) , Becham Road, Laiqabad, Landhi, Karachi – 75120
(+92-21)-8232414 , (+92-21)-4515600 , (+92-21)-5021188 (Fax)
kitcc@gem.net.pk
KITCC discussion on Flickr

14 Comments so far

  1. AH (unregistered) on February 13th, 2008 @ 3:52 pm

    This is a great post. Thank you for highlighting this excellent organization and the inspirational efforts of its dedicated staff.


  2. Ameer Hamza (unregistered) on February 13th, 2008 @ 7:22 pm

    The best way to start your association with these beautiful yet dis-advantaged kids is to donate blood to Kashif Iqbal Trust. If you have money to spare, donations must follow.

    Kindly spread this message by using email forwards or messaging on mobile phones.

    Thank you for your support.


  3. Jamal Shamsi (unregistered) on February 13th, 2008 @ 11:20 pm

    GREAT GOOD,

    MB you deserve a BIG BEARY HUG, Good JOB, Good Topic,

    will see what WE can do for it inn sha ALLAH


  4. Ayesha (unregistered) on February 14th, 2008 @ 2:10 am

    Great Try!, I wish reader of your post share this information with their family/friends/colleagues… Awareness is really really needed.. and people like you and Ameer Hamza can make a big difference…

    I would like to mention that me and my brother are thalassemics, and my brother is running a website for awareness of Thalassemia, http://www.thalassemia.com.pk

    Best Wishes
    Take Cares, Allah Hafiz
    -ayesha


  5. Tariq Khanani (unregistered) on February 14th, 2008 @ 11:33 am

    Good post,

    Lot is being done but still lot more is required.

    There are three major areas of effort in this regard:

    1. We need to spread awareness, to stop induction of new born thalassemics in our society.

    2. Providing better health facilities in small cities so that they dont have to come all the way to big cities for treatment.

    3. Improvement in existing health facilities, more and more funds are required.

    All of that requires sincere efforts and dedication. Its our duty as a human to participate in such efforts.

    Jazakallah Khair


  6. Planner (unregistered) on February 14th, 2008 @ 2:10 pm

    AoA

    MB Great Post!!

    Thallesamia is the problem growing day by day in our country, I have worked for the NGO working for the betterment of the thallesamia affected kids, not only Thallesaemia but also Haemophilia.
    But Kashif Iqbal Trust is just providing Transfusion facility and Iron Chillation Therapy. This is not the cure for the problem. Average life time of these kids is 9 -13 years. The only treatment for this problem is Bone Marrow Transplant, this facility requires atleast 15-18 Lac Rupees.
    This facility is only present in Karachi and Islamabad.

    1) Agha Khan Hospital, Karachi
    2) Bismillah Taqee Institute of Health Sciences and Blood Diseases Centre, Karachi
    3) Armed Forces Institute of Pathology, Islamabad


  7. Tariq Khanani (unregistered) on February 14th, 2008 @ 3:26 pm

    @PLANNER
    The only treatment for this problem is Bone Marrow Transplant

    It is, but its success rate is 60-80% and is not recommended after 12 yrs age.

    Average life time of these kids is 9 -13 years

    There are many married thalassemic couples around the world, even in Karachi.


  8. Farkhan (unregistered) on February 15th, 2008 @ 2:06 am

    For Valentine please go and spend an evening with these kids….


  9. Mohsin Ahmed (unregistered) on February 15th, 2008 @ 12:06 pm

    HATS OFF TO MB. Post was excellent, our society is in gr8 need of such things, with such posts most ppl like me, who always remain confused where to deposit Zakat and charity funds, will get some guidence.
    I SUGG SOME ONE PLZ START A NEW TOPIC IN WHICH SOME LIGHT TO BE SHADED ON SUCH INSTITUTE / ORG THAT ARE GENUINE AND TRUST WORTHY.


  10. Planner (unregistered) on February 15th, 2008 @ 4:17 pm

    @ Tariq Khanani
    Although the sucess rate decreases with the age but it is not 60 – 80 % but rather 70 – 80%.
    I have details about the BMTs perfomed in Bismillah Taqee Institute of Health Sciences and Blood Diseases Center, Karachi http://www.btihs.edu.pk
    and only way to keep their life on and on and on is iron chelation. But that is not the case with most of the children. Liver Failure is the major problem for these kind of childrens.
    I will update soon the statistics! Inshallah


  11. Ameer Hamza (unregistered) on February 18th, 2008 @ 11:38 am

    We, at Karachi Photographers Club, are planning to take our members to Kashif Iqbal trust so that each one of us may contribute blood for these patients.

    I think we must join hands with your group and arrange a grand meeting so that lot of people become aware of this situation.

    For more:

    http://www.flickr.com/groups/karachiphotographers/discuss/72157603907914094/


  12. afakonline on March 6th, 2008 @ 1:39 am


    http://bloodbank.afakonline.com

    A website for blood donors has been launched to facilitate Blood Seekers to find Blood Donors easily and free.
    So it is requested to Register your self with this website as Blood Donor.
    Forward this message to every one you know all over Pakistan specially to all blood donor societies in universities and colleges.
    Thanks


  13. javed.bakhsh (unregistered) on November 13th, 2010 @ 9:42 pm

    Aoa.this is superb post.you must get start now in rwp/isb for better treatment of suchailed children plz.may god bless u live long for ur kind efforts.may strengthen ur skills and hopes.thanks


  14. mullah jp-8 (18 wheel wali) (unregistered) on November 14th, 2010 @ 6:57 am

    saber kar…pathani kay han der hai andher nahi….



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