Comments on: Hope – Kashif Iqbal Thalassaemia Care Center (KITCC)

By: mullah jp-8 (18 wheel wali)

mullah jp-8 (18 wheel wali) — Sun, 14 Nov 2010 01:57:08 +0000

saber kar…pathani kay han der hai andher nahi….

By: javed.bakhsh

javed.bakhsh — Sat, 13 Nov 2010 16:42:40 +0000

Aoa.this is superb post.you must get start now in rwp/isb for better treatment of suchailed children plz.may god bless u live long for ur kind efforts.may strengthen ur skills and hopes.thanks

By: afakonline

afakonline — Wed, 05 Mar 2008 20:39:02 +0000

http://bloodbank.afakonline.com

A website for blood donors has been launched to facilitate Blood Seekers to find Blood Donors easily and free.
So it is requested to Register your self with this website as Blood Donor.
Forward this message to every one you know all over Pakistan specially to all blood donor societies in universities and colleges.
Thanks

By: Ameer Hamza

Ameer Hamza — Mon, 18 Feb 2008 06:38:10 +0000

We, at Karachi Photographers Club, are planning to take our members to Kashif Iqbal trust so that each one of us may contribute blood for these patients.

I think we must join hands with your group and arrange a grand meeting so that lot of people become aware of this situation.

For more:

http://www.flickr.com/groups/karachiphotographers/discuss/72157603907914094/

By: Planner

Planner — Fri, 15 Feb 2008 11:17:18 +0000

@ Tariq Khanani
Although the sucess rate decreases with the age but it is not 60 – 80 % but rather 70 – 80%.
I have details about the BMTs perfomed in Bismillah Taqee Institute of Health Sciences and Blood Diseases Center, Karachi http://www.btihs.edu.pk
and only way to keep their life on and on and on is iron chelation. But that is not the case with most of the children. Liver Failure is the major problem for these kind of childrens.
I will update soon the statistics! Inshallah

By: Mohsin Ahmed

Mohsin Ahmed — Fri, 15 Feb 2008 07:06:04 +0000

HATS OFF TO MB. Post was excellent, our society is in gr8 need of such things, with such posts most ppl like me, who always remain confused where to deposit Zakat and charity funds, will get some guidence.
I SUGG SOME ONE PLZ START A NEW TOPIC IN WHICH SOME LIGHT TO BE SHADED ON SUCH INSTITUTE / ORG THAT ARE GENUINE AND TRUST WORTHY.

By: Farkhan

Farkhan — Thu, 14 Feb 2008 21:06:42 +0000

For Valentine please go and spend an evening with these kids….

By: Tariq Khanani

Tariq Khanani — Thu, 14 Feb 2008 10:26:18 +0000

@PLANNER
The only treatment for this problem is Bone Marrow Transplant

It is, but its success rate is 60-80% and is not recommended after 12 yrs age.

Average life time of these kids is 9 -13 years

There are many married thalassemic couples around the world, even in Karachi.

By: Planner

Planner — Thu, 14 Feb 2008 09:10:35 +0000

AoA

MB Great Post!!

Thallesamia is the problem growing day by day in our country, I have worked for the NGO working for the betterment of the thallesamia affected kids, not only Thallesaemia but also Haemophilia.
But Kashif Iqbal Trust is just providing Transfusion facility and Iron Chillation Therapy. This is not the cure for the problem. Average life time of these kids is 9 -13 years. The only treatment for this problem is Bone Marrow Transplant, this facility requires atleast 15-18 Lac Rupees.
This facility is only present in Karachi and Islamabad.

1) Agha Khan Hospital, Karachi
2) Bismillah Taqee Institute of Health Sciences and Blood Diseases Centre, Karachi
3) Armed Forces Institute of Pathology, Islamabad

By: Tariq Khanani

Tariq Khanani — Thu, 14 Feb 2008 06:33:16 +0000

Good post,

Lot is being done but still lot more is required.

There are three major areas of effort in this regard:

1. We need to spread awareness, to stop induction of new born thalassemics in our society.

2. Providing better health facilities in small cities so that they dont have to come all the way to big cities for treatment.

3. Improvement in existing health facilities, more and more funds are required.

All of that requires sincere efforts and dedication. Its our duty as a human to participate in such efforts.

Jazakallah Khair